STORY
This is more than a documentary; it's a call to action. Through authentic storytelling, we aim to change the future of epilepsy. By humanizing the narrative around epilepsy and SUDEP, we break down barriers, spread awareness, and foster understanding.
Through honest interviews and candid footage capturing their day-to-day struggles, this documentary aims to shed light on the truth of living with Epilepsy, humanizing this often stigmatized condition.
Meet a family whose child has an extreme form of Dravet syndrome, a rare form of Epilepsy with a high mortality rate. Follow a young woman whose film career is a constant battle due to her lifelong diagnosis, nearly losing her life to seizures. Experience the profound impact of Epilepsy on motherhood as we follow a parent's journey, navigating pregnancy and raising a family.
These are just a few examples of the many stories we'll be covering. But our documentary doesn't stop there. Through the heartbreaking story of a family who lost a loved one to Sudden Unexpected Death in Epilepsy (SUDEP), we underscore the urgent need for a cure and advancements in research.
Backed by insights from medical professionals, researchers, and CEOs of global foundations, we provide a comprehensive understanding of Epilepsy and SUDEP while dispelling myths. This documentary inspires hope, educates, and advocates for change. Join us on this transformative journey as we work towards a world free of Epilepsy and SUDEP.
DIRECTORS STATEMENT
At 9, a deadly status epilepticus seizure brought me to the brink of life and death. Despite being told I'd outgrow them at 14, a subsequent week of three seizures confirmed a lifelong diagnosis. Through my journey, I discovered a lack of discussion about Epilepsy and SUDEP in both the healthcare and mainstream media. As a full-time professional in the film industry, I'm determined to raise awareness and spark a global conversation.
- Sabine Kahwaji
